Here are some facts and statistics I've collected over the last few days..
Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder, making CF one of the most common lethal genetic diseases in Caucasians. Overall, there are 30,000 Americans with CF, and an estimated 8 million people carry one copy of the defective gene that causes the disease.
- In the 1980s life expectancy of people with cystic fibrosis was 14 years.
- 10 years back, the life expectancy of a person with cystic fibrosis was around 18 years. Today it is 35 years.
- The median life expectancy of a newborn with cystic fibrosis has increased from 4 years to 32 years. It has been estimated that there has been more than 10 year increase in the average life expectancy of affected people in North America.
- Over 90% of the affected infants now survive beyond one year. Studies show that life expectancy of children will exceed 40 years.
- Life expectancy of individuals with adequate pancreatic function can be more than 50 years.
- In the United States, approximately 30,000 people have cystic fibrosis. Around 1,000 new cases of cystic fibrosis are diagnosed each year. One child of every 3,500 is born with cystic fibrosis.
- In Canada, the overall cystic fibrosis birth rate from 1971-1970 was stable. From 1988, cystic fibrosis birth rate increased to a rate of 1 in 3,608. Cystic fibrosis birth rate is stable for the last few years.
- In the UK, cystic fibrosis birth is about 1 in 2400 and 4% of the people are cystic fibrosis carriers.
- 80% of patients are diagnosed by the age of three. 10% of patients are diagnosed at the age of 18 and 3% patients are diagnosed in adulthood.
Canadian CF Facts: